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Working with Family Carers of People with Dementia

‘Negotiated’ coping as an essential outcome

School of Nursing and Midwifery, University of Sheffieldm.r.nolan{at}sheffield.ac.uk

Prue Ingram

Alzheimer’s Association, Victoria, Australiapingram{at}alzvic.asn.au

Roger Watson

School of Nursing, University of Hullr.watson{at}nursing.hull.ac.uk

Supporting family carers is likely to remain at the forefront of community care policy in dementia care for the foreseeable future. However, despite extensive research in the area there is little evidence for the effectiveness of current interventions. Many authors attribute this to methodological weaknesses and promote larger and more sophisticated trials. Using data from an Australian study of how carers of people with dementia cope with the challenges they face, this article calls for a re-appraisal of the ways in which a successful intervention is defined and promotes an approach based on partnership in which carers themselves play a significant role in determining ‘what works’.

Key Words: empowerment • evaluation • partnership • user and carer involvement

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