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Dementia, Vol. 1, No. 3, 367-382 (2002)
DOI: 10.1177/147130120200100308

‘Trying to Continue to Do as Much as They Can Do’

Theoretical insights regarding continuity and meaning making in the face of dementia

Heather L. Menne

Case Western Reserve Universityhlm9{at}po.cwru.edu

Jennifer M. Kinney

Miami Universitykinneyjm{at}muohio.edu

Darby J. Morhardt

Northwestern University Medical Schoold-morhardt{at}northwestern.edu

Face-to-face interviews were conducted with six individuals in the early stages of a dementia. Interviews were initiated to explore the day-to-day experiences of dementia. The commonality that emerged across the interviews was participants’ desire to maintain continuity with their previous way of life while coping with dementia-necessitated changes. We conceptualized this commonality in terms of Atchley’s (1989) articulation of continuity theory and Park and Folkman’s (1997) framework of meaning making. This research highlights how, despite their impairment, individuals with dementia not only are able but strive to maintain continuity and to make meaning of their situations. The results show that it is possible to gain insight from those in the early stages of dementia; the underlying practical and clinical implication is the importance of encouraging the maintenance of personhood by listening to the desires and concerns of those with dementia.

Key Words: continuity theory • dementia • meaning making • qualitative research • subjective experience


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