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Dementia
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Personal Spirituality of Persons with Early-Stage Dementia

Is it Related to Perceived Quality of Life?

Towako Katsuno

Tokyo Metropolitan University of Health Sciences

During times of stress and uncertainty, research has documented that individuals may turn to religion and spirituality as coping resources. But what about those with dementia who have a decreased cognitive capacity? Do they also turn to religion and spirituality and are these coping resources related to overall quality of life? The objective of this study was to describe the spiritual experiences of persons with early-stage dementia and to explore the relationship between personal spirituality and perceived quality of life. Twenty-three participants were interviewed using: a semi-structured interview guide; the System of Belief Inventory (SBI); and the Quality of Life Index (QLI). Qualitative data analysis illuminated an overall theme of `faith in God' and six related categories: beliefs; support from God; sense of meaning/purpose in life; private practice; public practice; and changes due to dementing illness. There were significant relationships between the SBI scores and the QLI scores. Findings suggest that those with early-stage dementia often find personal spirituality and its internal meanings important in coping with their life situations, that is, spirituality is associated with their perceived quality of life.

Key Words: Alzheimer's disease • coping • religion • standardized instrument

Dementia, Vol. 2, No. 3, 315-335 (2003)
DOI: 10.1177/14713012030023003
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