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Dementia
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Ethical Considerations in the ENABLE Project

Sidsel Bjørneby

Own Company, sibjoern{at}online.no

Päivi Topo

National Research and Development Centre for Welfare and Health (STAKES) Finland, Paivi.Topo{at}stakes.fi

Suzanne Cahill

Dementia Services Information and Development Centre, Dublin, Scahill{at}stjames.ie

Emer Begley

Dementia Services Information and Development Centre, Dublin, ebegley{at}stjames.ie

Kerry Jones

Dementia Voice, UK, kjones{at}dementia-voice.org.uk

Inger Hagen

Own Company, post{at}ihagen.no

Jurate Macijauskiene

Kaunas University of Medicine, Lithuania, juramac{at}takas.lt

Torhild Holthe

Norwegian Dementia Research Centre, torhild.holthe{at}nordemens.no

This article describes the ethical considerations and the framework that formed the basis for the design of the research methods, as well as the basis for choosing the devices to be tried out, in the ENABLE project. The principles of autonomy, beneficence and justice are defined and applied to an analysis of researchers’ experience. Some of the ethical difficulties arising from conducting an intervention study of this type with persons with dementia are outlined. The article needs to be read in conjunction with the other ENABLE articles published in this issue of Dementia.

Key Words: carers • dementia • ethics • research • technology

Dementia, Vol. 3, No. 3, 297-312 (2004)
DOI: 10.1177/1471301204045162
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