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Dementia, Vol. 4, No. 3, 327-339 (2005)
DOI: 10.1177/1471301205055026

The content of available practice literature in dementia and intellectual disability

Nancy Jokinen

University of Calgary, Canada, nsmjokin{at}ucalgary.ca

Adults with intellectual disability are living to ages seen within the general population and they, too, are at risk of developing dementia. The purpose of this review was to identify the nature and content of the literature related to adults with intellectual disability and dementia and bring together guidelines for services and staff providing care. The preponderance of work between 1995 and 2004 focuses on the biomedical, diagnosis and assessment aspects of the disease. Although guidelines exist, there is a lack of published literature on the efficacy of practice strategies to guide the provision of daily care. Future research is discussed that could support continued community living and high quality of life during all stages of the disease.

Key Words: dementia • developmental disability • guidelines • practice • services


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