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Dementia
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Group home care for adults with intellectual disabilities and Alzheimer’s disease

Matthew P. Janicki

University of Illinois at Chicago, USA, mjanicki{at}uic.edu

Arthur J. Dalton

New York State Institute for Basic Research in Developmental Disabilities, USA, daltonaj{at}aol.com

Philip McCallion

University at Albany (New York), USA, mcclion{at}albany.edu

Diann Davies Baxley

University at Albany (New York), USA, diabaxley{at}msn.com

Anna Zendell

University at Albany (New York), USA, algze{at}yahoo.com

The growing numbers of individuals with intellectual disabilities affected by Alzheimer’s disease and related dementias has raised new challenges for community care providers. This article examines means of providing community group home-based care in a sample of care providers in five different countries. The aim is to identify trends that have emerged. Two samples of group homes for adults with intellectual disabilities affected by dementia were studied to determine: (1) what are the physical characteristics of the homes; (2) what physical environmental adaptations have been made in response to behavioral deterioration expressed by residents with dementia; and (3) what are the demands on staff resulting from dementia care. The first sample of group homes in five countries provided comparative international data on home designs, staffing, costs, and residents. The second sample, drawn from homes in the USA and the UK, provided data on the impact of dementia. Findings revealed staffing and design of homes varied but generally abided by general practices of dementia care; homes relied on existing resources to manage changes posed by dementia care; programmatic and environmental adaptations were implemented to address progression of dementia; and residents with dementia presented more demands on staff time with respect to hygiene maintenance and behavior management when compared to other residents not affected by dementia.

Key Words: community care • dementia • dementia care policy • group homes

Dementia, Vol. 4, No. 3, 361-385 (2005)
DOI: 10.1177/1471301205055028
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