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Dementia
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The role of advocacy in our adventure with Alzheimer's

Jenny Knauss

Don Moyer

Advocate, USA

We show how our natural reaction to Jenny's diagnosis of Alzheimer's was advocacy, explain how this gives positive meaning to our lives and how it revealed flaws in the Alzheimer's establishment. We give some examples of projects this has led us to initiate and show why it is best for our ilk to initiate, inform and act as jury for activities affecting us.

Key Words: assistive technologies • early diagnosis • informing • judging • peer support • post-diagnosis support • public policy • reforming the dementia establishment

Dementia, Vol. 5, No. 1, 67-72 (2006)
DOI: 10.1177/1471301206059755
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