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Dementia, Vol. 5, No. 3, 353-373 (2006)
DOI: 10.1177/1471301206067111
© 2006 SAGE Publications

Family carers' accounts of general practice contacts for their relatives with early signs of dementia

Murna Downs

University of Bradford,UK

Steven M.B. Ariss

University of Bradford and NHS,York,UK

Eryk Grant

University of Bradford,UK

John Keady

Northumbria University/for dementia,UK

Stephen Turner

Dental Health Services,Dundee,UK

Michelle Bryans

NHS Lanarkshire,UK

Jane Wilcock

University College,London,UK

Enid Levin

Social Care Institute for Excellence,UK

Ronan O'carroll

University of Stirling, UK

Steve Iliffe

University College,London,UK

The role of families in supporting people with dementia is widely acknowledged in literature and UK government policy. The role of general practice in ensuring early and effective support for people living with mental health problems including dementia is also enshrined in UK policy. As part of a larger study, a total of 122 carers were asked to rate predefined aspects of the primary care response. For some responses they were also asked to provide a reason for their rating. The purpose of this study was to examine carers' accounts of contacts with general practitioners (GPs) and general practice teams when they were first approached with concerns about their relative. Findings suggest that, on average, carers rate the service as being at least ‘good'. However, their accounts describe a wide variety of experiences and demonstrate that expressed satisfaction does not necessarily reflect a satisfactory service. Both practitioner-related and carer-related issues were cited as reasons for their ratings. Implications for practice and research are discussed.

Key Words: evaluation • satisfaction • user involvement


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