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Dementia
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What's this?

Working together with persons with early stage dementia and their family members to design a user-friendly technology-based support service

Elizabeth Hanson

ÄldreVäst Sjuhärad Centre, University College of Bor's and University of Kalmar, Sweden, elizabeth.hanson{at}hb.se

Lennart Magnusson

University College of Bor's and at the University of Kalmar, Sweden

Helene Arvidsson

Tolvshillingen Dementia Day Centre, Bor's municipality, Sweden

Anette Claesson

ACTION Call Centre, Bor's, Sweden

John Keady

University of Manchester and the Bolton, Salford and Trafford Mental Health NHS Trust, UK

Mike Nolan

University of Sheffield, UK

This article describes how researchers, practitioners and technicians in West Sweden worked together with older people with early stage dementia and their family members to develop a user-friendly technology-based information, education and support service, based on the generic ACTION participatory design model. Ways of working in partnership with older people with early stage dementia and their family members are explored, and key lessons learned are highlighted. The overriding message is that elders with early stage dementia can be actively involved throughout the entire research and development process. Essential prerequisites are time and ongoing support by skilled practitioners and family members. Preliminary findings reveal that older people with early stage dementia can learn and benefit from user-friendly technology, especially when used together with others in a similar situation.

Key Words: early stage dementia • information and communication technology • participatory design • partnership working • user involvement

Dementia, Vol. 6, No. 3, 411-434 (2007)
DOI: 10.1177/1471301207081572
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