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Dementia
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Changing practice in dementia care for people in care homes towards the end of life

Catherine Evans

University of Hertfordshire, UK, c.j.evans{at}herts.ac.uk

Claire Goodman

University of Hertfordshire, UK, c.goodman{at}herts.ac.uk

This paper reports on the background and design of an innovative study seeking to develop and test a dementia specific approach to palliative care for older people in care homes, entitled Evidence-based interventions in dementia towards the end of life (EVIDEM EoL). The study uses a two-phase prospective design. Phase I intends to explore and document characteristics and support needs for people with dementia in care homes towards the end of life. Data from phase I informs phase II, the development and testing of a dementia specific education and support tool for palliative care in care homes. This paper reports on the study's background and phase I design. The study is part of the EVIDEM research programme (Evidence-based Interventions in Dementia) (www.evidem.org.uk).

Key Words: care homes • dementia • end of life • older people

Dementia, Vol. 8, No. 3, 424-431 (2009)
DOI: 10.1177/14713012090080030703
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