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Dementia
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Staff-based measures of individualized care for persons with dementia in long-term care facilities

Neena L. Chappell

University of Victoria, Canada, nlc{at}uvic.ca

R. Colin Reid

University of British Columbia, Okanagan, Canada, colin.reid{at}ubc.ca

Jessica A. Gish

University of Calgary, Canada, jagish{at}ucalgary.ca

Although individualized care for persons with dementia in long-term care institutions has become accepted as best practice, there have not been easy-to-use, multi-item reliable measures of the concept for scientific research or for administrative use. Following review of the literature, consultation with experts in the field, and direct observation within long-term care facilities, three domains of individualized care (knowing the person/resident, resident autonomy and choice, communication — staff-to-staff and staff-to-resident) were chosen as appropriate for the development of multi-item paper-and-pencil staff completion scales. These scales are presented in this article, including, where appropriate, shorter scales derived from factor analyses. The findings suggest that these domains of individualized care lend themselves to brief multi-item measures and that not all conceptual domains of individualized care co-occur in practice. Further, supplemental staff training in individualized care practice may be warranted.

Key Words: best practices • care aides • dementia care • instrument development • long-term institutional care • nursing home care

References

  • Abdullah, S.N. (1995). Towards an individualized client's care: Implication for education: The transcultural approach. Journal of Advanced Nursing, 22, 715—720.[CrossRef][Medline] [Order article via Infotrieve]
  • Barnes, I. (1996). The hidden joys on a dementia unit. Canadian Nursing Home, 7(4), 19—22.
  • Beck, C.T. (1999). Quantitative measurement of caring. Journal of Advanced Nursing, 30(1), 24—32.[Medline] [Order article via Infotrieve]
  • Beck, C.K., & Vogelpohl, T.S. (1995). Cognitive impairment and autonomy. In L.M. Gamroth, J. Semradek, & E.M. Tornquist (Eds.), Enhancing autonomy in long-term care: Concepts and strategies (pp.44—57). New York: Springer.
  • Brooker, D. (2005). Dementia care mapping: A review of the research literature. The Gerontologist, 45(1),11—18.[Abstract/Free Full Text]
  • Calkins, M.P. (2001). The physical environment and social environment of the person with Alzheimer's disease. Aging Mental Health, 5(Supplement 1), S74—S78.
  • Carpenter, B., Van Haitsma, K., Ruckdeschel, K., & Lawton, PM (2000). The psychosocial preferences of older adults: A pilot examination of content and structure. Gerontologist, 40(3), 335—348.[Abstract/Free Full Text]
  • Chappell, N.L., & Reid, R.C. (2000). Dimensions of care for dementia sufferers in long-term care institutions; are they related to outcomes? Journals of Gerontology: Social Sciences, 55B(4), S234—S244.
  • Cohen-Mansfield, J., Golander, H., & Giyorah, A. (2000). Self-identity in older persons suffering from dementia: Preliminary results. Social Science & Medicine, 51, 381—394.[CrossRef]
  • Coulson, I. (1993). The impact of the total environment in the care of and management of dementia. American Journal of Alzheimer's Care and Related Disorders & Research, May/June, 18—25.
  • Crocker & Algina (1986). Introduction to classical and modern test theory. Orlando, FL: Rinehart & Winston.
  • Davis, M.A. (1991). Nursing home ownership revisited: Market, cost and quality relationships. Medical Care, 3,1062.
  • Day, K., Carreon, D., & Stump, C. (2000). The therapeutic design of environments for people with dementia: A review of, the empirical research. The Gerontologist, 40(4), 397—416.[Abstract/Free Full Text]
  • Eales, J., Keating, N., & Damsma, A. (2001). Seniors' experiences of client-centred residential care. Aging and Society, 21, 279—296.
  • Feinberg, L., & Whitlatch, C. (2001). Are persons with cognitive impairment able to state consistent choices? The Gerontologist, 41(3), 374—382.[Abstract/Free Full Text]
  • Fried, T.R., Bradley, E.H., & Towle, V.R. (2002). Assessment of patient preferences: Integrating treatments and outcomes. Journal of Gerontology, 57B(6), S348—S354.
  • Gerrish, K. (2000). Individualized care: its conceptualization and practice within a multiethnic society. Journal of Advanced Nursing, 32(1), 91—99.[CrossRef][Medline] [Order article via Infotrieve]
  • Happ, M., Williams, C.C., Strumpf, N.E., & Burger, S.G. (1996). Individualized care for frail elders: Theory and practice. Journal of Gerontological Nursing, 22(3), 6—14.[Medline] [Order article via Infotrieve]
  • Hofland, B. (1994). When capacity fades and autonomy is constricted: A client-centered approach to residential care. Generations, 18(4), 31—35.[Medline] [Order article via Infotrieve]
  • Hooyman, N. (1990). Women as caregivers of the elderly: Social implications for social welfare policy and practice. In D.E. Biegel & A. Blum (Eds.), Aging and Caregiving — Theory, Resarch and Policy (pp.221—241). Newbury Park, CA: Sage Publications.
  • Loewenstein, D.A. (2003). Semantic interference in mild Alzheimer disease. American Journal of Geriatric Psychiatry, 11(2), 252—255.[CrossRef]
  • Lustbader, W. (1996). Tales from individualized care. Journal of Gerontological Nursing, 22(3), 43—46.
  • McClennan, R.S., & Harkless, D.E. (2002). Testing of the PHS-ES: A measure of perimenopausal health self-efficacy. Journal of Nursing Measurement, 10(1), 15—26.[CrossRef][Medline] [Order article via Infotrieve]
  • National Women's Report on Health (2003, June). Women, chronic stress and resilience. Washington, DC: National Women's Health Resource Centre.
  • Nolan, M., Ryan, T., Enderby, P., & Reid, D. (2002).Towards a more inclusive vision of dementia care practice and research. Dementia, 1(2), 193—211.[Abstract/Free Full Text]
  • Pett, M.A., Lackey, N.R., & Sullivan, J.J. (2003).Making sense of factor analysis: The use of factor analysis for instrument development in health care research. Thousand Oaks, CA: Sage.
  • Rader, J. (1995). Individualized dementia care: Creative, compassionate approaches. New York: Springer.
  • Reid, R.C., Chappell, N.L., & Gish, J.A. (2007). Measuring family perceived involvement in individualized long-term care. Dementia: The International Journal of Social Research and Practice, 6(1), 89—104.
  • Russell, L. (2006). An exploratory analysis of an interprofessional learning environment in two hospital clinical teaching units. Journal of Interprofessional Care, 20(1), 29—39.[CrossRef][Medline] [Order article via Infotrieve]
  • Sloane, P.D., Mitchell, M.C., Weisman, G., Zimmerman, S.L., Foley, K.M., Calkins, M. et al. (2002). The Therapeutic Environment Screening Survey for Nursing Homes (TESS-NH): An observational instrument for assessing the physical environment of institutional settings for persons with dementia. Journal of Gerontology: Social Sciences, 57B(2), S69—S78.[Abstract/Free Full Text]
  • Sloane, P.D., Zimmerman, S.Z., Williams, C.S., Reed, P.S. Karminder, S.G., & Preisser, J.S. (2005). Evaluating the quality of life of long-term care residents with dementia. The Gerontologist, 45, 37—49.[Abstract/Free Full Text]
  • Steffen, A.M., McKibbin, C., Zeiss, A.M., Gallagher-Thompson, D., & Bandura, A. (2002). The revised scale for caregiving self-efficacy: reliability and validity studies. Journal of Gerontology, 57B(1), 74—86.
  • Sturmey, P., Tsiouris, J.A., & Patti, P. (2003). The psychometric properties of the multi-dimensional observation scale for elderly subjects (MOSES) in middle aged and older populations of people with mental retardation. American Journal of Geriatric Psychiatry, 18, 131—134.[CrossRef]
  • Suhonen, R., Leino-Kilpi, H., & Valimaki, M. (2005). Development and psychometric properties of the Individualized Care Scale. Journal of Evaluation in Clinical Practice, 11(1), 7—20.[CrossRef][Medline] [Order article via Infotrieve]
  • Suhonen, R., Valimaki, M., & Katajisto, J. (2000). Individualized care in a Finnish healthcare organization. Journal of Clinical Nursing, 9(2), 218—219.[CrossRef][Medline] [Order article via Infotrieve]
  • Servellen, van G. (1988). Nurses perceptions of individualized care in nursing practice. Western Journal of Nursing Research, 10(3), 291—306.[Free Full Text]
  • Wellin, D., & Jaffe, D.J. (2004). In search of `personal care': Challenges to identity support in residential care for elders with cognitive illness. Journal of Aging Studies, 18(3), 275—295.[CrossRef]
  • Werezak, L.J., & Morgan, D.G. (2003). Creating a therapeutic psychosocial environment in dementia care. Journal of Gerontological Nursing, 29(12), 18—25.
  • Whitlatch, C.J., Feinberg, L.F., & Tucke, S.S. (2005). Measuring the values and preferences of everyday care of persons with cognitive impairment and their family caregivers. The Gerontologist, 45(3), 370—380.[Abstract/Free Full Text]
  • Williams, J., & Rees, J. (1997). The use of `dementia care mapping' as a method of evaluating care received by patients with dementia: An initiative to improve quality of life. Journal of Advanced Nursing, 25, 316—323.[CrossRef][Medline] [Order article via Infotrieve]
  • Woods, R.T. (2001). Discovering the person with Alzheimer's disease: Cognitive, emotional and behavioural aspects. Aging Ment Health, 5(Supplement I), S7—S16.[CrossRef][Medline] [Order article via Infotrieve]
  • Zimmerman, S.I., Sloane, P.D., Gruber-Baldini, A., Calkins, M., Leon, J., Magaziner, J. et al. (1997). The philosophy of special care in Alzheimer's special care units. Journal of Mental Health and Aging, 3(2), 169—181.

Dementia, Vol. 6, No. 4, 527-547 (2007)
DOI: 10.1177/1471301207084372
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